You are here:

Patient Group Partners

The SMC works in partnership with patient groups from around the country to capture patient and carer experiences. We accept submissions from all registered patient groups, from small local support groups to large national voluntary organisations. Patient groups are often looking to speak to patients and carers about new medicines which may help them. You can find details of most patient groups by using the search directory on

To take part in the SMC review process patient groups must first register as an SMC Patient Group Partner. This is very straightforward to do. You complete a simple registration form, providing details about your patient group. This is a one off process and the details can be updated as required. We will contact you each year to request an update. You can either register at the same time as you send your first submission or in advance. 

If you need any help completing the form please don't hesitate to get in touch with our Public Involvement team via email at

The following patient groups have worked in partnership with SMC since our new registration system launched in April 2015. This list is continually growing, with new groups registering to become Patient Group Partners each time a medicine which is of interest to the patient group they represent is submitted to SMC. 

Action Duchenne

Action for Pulmonary Fibrosis

ADHD Parent Support West Glasgow

Addison's Disease Self Help Group

Alpha 1 Awareness UK

Alpha-1 UK Support Group

Anthony Nolan

AntiCoagulation Europe (ACE)

The Ann Edgar Charitable Trust (TAECT)

Asthma UK

Birth Trauma Association

Bladder Health UK


Breast Cancer Care

Breast Cancer Now

British Liver Trust

The British Porphyria Association

The British Thyroid Foundation

Chest, Heart and Stroke Scotland

CLL Support Association (CLLSA)

The Chronic Myeloid Leukaemia Support Group

Crohn's and ColitisUK

Cystic Fibrosis Trust

The Cystinosis Foundation UK

Diabetes Scotland

Dundee and Angus ADHD Support Group

Edinburgh & Lothian Prostate Cancer Support Group

Epilepsy Action

Epilepsy Scotland

Faces & Voices of Recovery UK

Fight Bladder Cancer 

Fungal Infection Trust

Gauchers Association Ltd

Haemophilia Scotland

Harrison's Fund

The Hepatitis C Trust

Hepatitis Scotland

HIV Scotland

The HS Trust

Jo's Cervical Cancer Trust

Kidney Cancer Scotland

Kidney Cancer Support Network

Kidney Research UK

LHON (Leber's Hereditary Optic Neuropathy Society) 

Let's Talk About Mouth Cancer

The Leukaemia CARE Society

Lymphoma Association


Macular Society

MASScot (Melanoma Action & Support Scotland)

MDS UK Patient Support Group

Melanoma UK

Migraine Action

The Migraine Trust


MPS Society

MRSA Action UK

The MS Society

Muscular Dystrophy UK

Myeloma UK

National Ankylosing Spondylitis Society (NASS)

National Aspergillosis Centre

National Lung Cancer Forum for Nurses (NLCFN)

National Rheumatoid Arthritis Society

NET Patient Foundation

Neuroblastoma UK


ORT Recovery and ME National Network


Ovarian Cancer Action

Pain Concern

Patients on Intravenous and Naso-gastric Nutrition Treatment (PINNT)

The PBC Foundation

Perth & Kinross ADHD Support Group

The Pituitary Foundation

PNH Scotland

Polycystic Kidney Disease Charity

Prostate Cancer UK

Prostate Scotland

Psoriasis and Psoriatic Arthritis Alliance (PAPAA)

The Psoriasis Association 

Pulmonary Fibrosis Trust

Pulmonary Hypertension Association UK (PHA UK)

Pumping Marvellous

Revive MS Support

Royal National Institute of Blind People (RNIB)

Roy Castle Lung Cancer Foundation

Sarcoma UK

Scottish Drugs Forum

Scottish Lung Cancer Nurses Forum

Short Bowel Survivor and Friends

SMA Support UK

The SMA Trust

Solving Kids' Cancer Europe

Stroke Association

Tackle Prostate Cancer 

Terrence Higgins Trust Scotland

Thrombosis UK

Thyroid Cancer Alliance

Tuberous Sclerosis Association

UK Sepsis Trust

UK Thalassaemia Society

Waverley Care